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Orb , 25 Jun 2014

Those little white plugs and the painful nodules that multiply

Location: Central California Age: 45 Health in General: Good Diagnosed Illness: 10+yrs Fibro, Hypersommina/Chronic Fatigue (sleep mean 1.4), Chemical sensitivity, Noise Sensitivity, Allergies to molds, GERD ,Tachycardia, Double jointed through out (means I have shallow joint sockets), Lactose intolerant, IBS Skin Health: Youth - tight pores little to no blemishes, very fair completion, no scaring, average sun exposure Late Teens Early Twenties - mild facial acne, sever back acne. Late Twenties through Early Thirties - Oily hair that required daily washing, Oily scalp, oily completion, pours slightly visible, light to moderate acne on face with moderate back acne constantly. Sought Medical Intervention from Dermatologist at age 30 and was prescribed Acutaine Outcome: EXCELLENT! Fast Forward 10 years to current: Strange facial smell. Aprox. 6 open lesions, all on right side of face. Scalp sores, and athletics foot (sever) most of my nails have fallen off. This began about 3 years ago with an under the skin eruption of what I thought was a pimple. After about 4 to 6 months of attempting to extract all of the congestion, I seen improvement. New nodules began to appear. I developed one on my rt, cheek, 3 on my chin, one on my frontal jaw line, 2 on my forehead and 2on my nose. These were usually not painful but would become extremely festered to what appeared to be a white head. Not able to resist the temptation to squeeze, I would attempt to pop these things. Never once did any of these things pop, in fact they only multiplied and got larger. About October of 2013, I started noticing a build up on my scalp. When I scrubbed my hair with shampoo it would hurt in a few spots. The spots felt like gaping holes and they would ooze. These were extremely painful and interrupted my daily living. While attending to my nightly routines of washing my face I discovered I very large lump on the lower right side of my skull. It was projecting up from my scalp and was about the size of my thumb. The next morning I called my FD and made a appt. to have her exam. She looked at my scalp and concluded that it was a fungus. And the knot on my scalp was a swollen lymph. Nothing was prescribed and I was told to go purchase Selcin Blue and that should cure me right up. After one week of use my condition had only gotten worse. I went to the pharmacy to see if there was any other product I could buy since it seemed that the blue stuff wasn't. I was at a loss with all the products so I made my way to the Pharmacist on duty and explained my condition to him. He was very helpful in assisting me to a better product but he also advised me to contact my doctor for a script as the condition I was diagnosed with would not be cured with OTC shampoos. He explained to me that I needed a prescribed shampoo along with an oral anti fungus. I call the office and left this info with my nurse. I must say that I was more then surprised when the return call from my doc. Was to tell me to continue with the shampoo for another 10 day and nothing else was suggested. BUT THIS WASNT WORKING AND MY CONDITION WAS GETTING WORSE. Frustrated by this and in great pain from these open sores I went to our local urgent care. There I was seen by a doc who examined my scalp and said it was a staff infection. She prescribed a round of antibiotics and I was on my way. The scalp sores did heal but the growths on my face excelled. One of those that is on my chin took on a different look. I started looking like a wart. i left it alone until the moment I thought I seen a white looking sorta wormish thing poking out of it. It was one of those things that many here have described. It was a plug and there were many more to follow. I worked that thing down over many weeks until I got every one of those things out but it wasn't until I began to use some Athletes foot cream on it until I noticed to start to die off. Its been about 3 months and just last week that wart thing is coming back. I also still get scalp sores monthly and as of last week I now have a growth under my right eyebrow that bubbles and oozes with crud. I just want this to go away once and for all! I will be seeing a derm. This thursday, but I do wish I could find a magic natural remedy to cure what ever this is that has plagued me.
98 Answers
TeeGee
December 20, 2015

In reply to by spottyface1

Hi, you say it will get worse before it gets better. Like for how long will that take. I mean Christmas is 5 days away. so how long does this take?

spottyface1
December 20, 2015

In reply to by TeeGee

I don't know if I can really answer that, especially if we are dealing with something different. You might just try using the stuff topically at first and wait until after Christmas to take the oral medicine if you decide to do so. If you have demodex mites then the dye off reaction might not be all that severe.

TeeGee
December 20, 2015

In reply to by spottyface1

on one side of my cheek i have an inward lesion its like it pulled the skin in. the other side of mt cheek i actually picjed it so much its a hole now and i can feel them inside if i put twizzors in there. and larve comes out or like long slug things. on my chin is a bunch of little white heads that itch. I'm such a mess. Where do you kive? are you in the USA?

TeeGee
December 20, 2015

In reply to by spottyface1

on one side of my cheek i have an inward lesion its like it pulled the skin in. the other side of mt cheek i actually picjed it so much its a hole now and i can feel them inside if i put twizzors in there. and larve comes out or like long slug things. on my chin is a bunch of little white heads that itch. I'm such a mess. Where do you kive? are you in the USA?

spottyface1
December 21, 2015

In reply to by TeeGee

Yes, I live in Florida. I understand the frustration and desperation that you feel. I really do. There is hope and you are not the only person to be going through this. I felt like I was the only person in the world to be dealing with this problem, and that nobody understood or could offer any help or answers...and it is a very lonely and scary place to be. You are the only person that I have ever shared this with because nobody else could relate. Based on what you have described and comparing it to my own problem and research, I definitely think (in my very unscientific and unprofessional opinion) that you are dealing with some sort of parasite. Don't fret, at least now you have an idea of what you are dealing with. There are several different medications that target parasites. Albendazole, Ivermectin, Praziquantel, Fenbendazole, and something else called Banocide for a fillarial worm type infection. Luckily with the advent of the internet and ebay/amazon you can get these medicines fairly easily as well as reading up on medical information. Also, something that I have not done yet but am going to start using after Christmas is lye soap. (I'm not talking about using draino on my face here...)I have layers of dead skin that I need to remove and lye soap is supposed to really help. I'll probably order 'Grandma's Lye Soap' which is for face and body. I also read a post about somebody dealing with the same issue who had hard calcified skin (which is what I'm still dealing with) who put nair on his face to let the lye dissolve the hard keratinized/calcified skin that the parasites caused. If the soap isn't strong enough then I might try that (after all, nair is something that people put on their skin to remove hair at the root...if I try it, I'll do so cautiously)

TeeGee
December 21, 2015

In reply to by spottyface1

Hi,
you've been so kind & helpful. Truly cant thank you enough. I live in Pennsylvania. I'm going to try the ivermectin after the holidays. I have another doctors appointment tomorrow which I'm sure he'll say I'm crazy. I'm going to order Abenzazole. Do you think thats a good idea. I hate to keep asking you all these questions, so sorry.. I just dont know snyone else to talk to that understands. Nobody in my extended family has any idea. They just think i have a cyst on either side of my face and i use a bandaid to cover it when im aroubd them. My husband knows but he has no idea really what im dealing with. he supports me & doesnt fhink Im crazy. he just doesnt kniw what to do. really im embarrassed to tell him everythibg. is it possible to emsil you directly? I guess not cause then everyone would have the email address on this site. Anyway thank you again for always getting back to me and for all your help. have you ever tried Black Soap i think its called Shea Moisture Black soap. or Dr Bronners Castile Soap.

spottyface1
December 21, 2015

In reply to by TeeGee

Hi, you can ask me anything you want...and I wear band-aids on my face too. My husband knows somewhat as well, but I haven't told him everything because I am also too embarrassed. I didn't really go into the pain and heart ache that this has caused, but I can assure you that there is probably nothing you could say or ask that I could not relate to in some way. I hope that your doctors appointment goes well, but if he/she thinks that you are crazy just know that you most certainly are not and neither are you alone. If the doctor will not or can not treat you, (as I experienced numerous times) you can just smile and say ok and walk out of their office with hope. You can treat yourself. (What was it my dad always told me,...oh yes, "if you want something done right, do it yourself") I would go ahead and order the albendazole. Even the medical community suggests taking two medications at the same time for a better treatment. It won't hurt you, but here is the only problem (and this is what helped me to figure out what I have) Ivermectin treats mites, albendazole also treats mites and works really well for hookworms and somewhat for tapeworms. If you have demodex or a hookworm, then taking ivermectin and albendazole together is probably your best bet (I think I probably had some demodex mites as well). However, if it is a tapeworm, then ivermectin won't help and albendazole won't be enough. You will need to take praziquantel as well. Medical research and posts on curezone say that if a person has a tapeworm problem, then taking albendazole and praziquantel is the best bet. I think the ivermectin and albendazole that I started out taking worked on any demodex mites that I had, and I think the albendazole killed a good bit of the tapeworm larva that I had...it just didn't get it all. I then took the praziquantel and have made the most improvement. You can order all three of those medications from ebay. 100 grams of prazi powder is about 100 dollars on ebay, 100 dollars is a lot but not when you consider how much it would cost if you tried to order ivermectin, albendazole, and prazi tablets from some online pharmacy overseas - not to mention the safety and additional time it would take to arrive. Plus, evidence shows that the liquid albendazole is much better absorbed then the chewable tablets which are made for humans. I haven't tried the black soap but I'll try it if you think it's good. I wouldn't have a problem with giving you my email, I wonder if we can contact the administrators to exchange emails?

TeeGee
December 21, 2015

In reply to by spottyface1

I just bought the black soap. It seems to help a little with skin texture, for me anyway. I cant say its done anything else. I ordered the albenzazol from ebay today. i also just got Pierce's Nu Stock. have you tried that yet? I cant say if i can see a big difference. made my skin really dry almost like leather. Don't think it has done much else. it smells like rotten eggs. I mixed it with Zinc & tree tea to help with the smell. slept with it all night on my face. what a mess.. Im not sure what anything is doing to my face really since Im putting so many different things on it. Borax, peroxide, Nu Stock, black soap, bye bye blemish, Its just everything & anything.. Im so screwed up with all this stuff, I feel like its the never ending battle..I'm going to live this life forever.. Which I cant see how the hell i can. I just want it over. i want to get up in the morning and jump in shower, get ready in 30 minutes and go. instead i take so many hours that i have to start prep the night before, which still takes me hours the next day and sometimes i take so long that i just say forget it. I hate the thought of having to go out the door. its the biggest nightmare. i feel like i'm living in a bubble. I truly hate living this way. What part of Florida are you in? I live about 30 minutes outside of Philadelphia in suburbs. Weather getting cold here.

TeeGee
December 21, 2015

In reply to by TeeGee

question? before i head to the doctors today.. what can a doctor prescribe? I mean is he able? If so, I'd like to flat out ask him for it.. Do you know what's available as a medical perscription that a doctor can give?

spottyface1
December 22, 2015

In reply to by TeeGee

Hi TeeGee, Gosh I'm so sorry it has taken me so long to get back to you. I have been thinking about you all day...how did the doctor's appointment go???? As far as what a doctor might prescribe, the three medicines that I have talked about are made for humans as well as animals. It's just that no doctor would ever consider that I was suffering from some sort of parasite and so they would never give them to me. That's when I started looking into veterinary medicines. Your description about your feelings and gettitng dressed in the morning....oh goodness...pretty much word for word how I have felt the last three years of my life. I am dreading Christmas because I am still trying to deal with the dying cysts on my face. I had it on both cheeks and on my nose. I pretty much have the spots on my left cheek and nose taken care of. The right side of my face is a different story...its Baaaaaaaad!! I live in central florida and its pretty warm here...I'm gonna open a new email account that doesn't have my name as part of the address and post it here so that maybe we can just email each other or talk on the phone if you want to. Again, I am so sorry that I am just now able to get back to you....please let me know what the doctor said.

TeeGee
December 22, 2015

In reply to by spottyface1

The doctor of course thinks I'm imagining everything. He put a Qtip in the one side of my cheek where i have a hole, and said okay Tina what do you see. I said well I dont see anything on the Qtip of course... thats because I put ByeBye blemish drying sulfer in the hole so it wouldnt leak on my drive here. Like he was trying to act like I would of saw something when nothing was there. soooooo frustrating. He told me to go on Accutane & birth control pills & that will stop the acne. I said I have a Demodex & parasite, not acne. he gave me Permethrine 5% cream. I hate that they all act like were crazy. makes me so mad. I lkmow you deal with all these same things. its so overwhelming. I just hate everyday. hate getting ready, hate being invited to go anywhere, hate that family & friends think im anti social. i just hate everything. I cant wait for this to just go away and finally live like a normal person. i change hair stylist every other month so i dont fave the same stylist over and over. I wont get my eyebrows done cause i dont want anyone looking that close to me. Its such a chore to try and do anything normal. I havent gone to church in years. I was asked to leave Yoga, instructor felt i was contagious and said other clients in class were uneasy with me being there. so basically I was kicked out. How gross is that. i was totally embarressed. this like stinks and thats being nice. Jeeze, im tired of being tired. I hate hearing myself say all this crap. im just aggravated I guess. Anyway I never even ask how you are feeling. Im sure you have battles everyday as well. How do you deal with it all. Tina

spottyface1
December 22, 2015

In reply to by TeeGee

Hi Tina. I really am sorry that your doctor's appointment wasn't as helpful as you had hoped, but I'm not surprised. If your spots are draining then you might need some antibiotics. It won't get rid of the parasites, but it will help the draining that you are dealing with. Something else that I thought might be a possible avenue to seek treatment, I read someone's post on some site (I think curezone) and the person described some very similar wounds and the same exact treatment from dermatologists. (I say treatment meaning the way he/she was spoken to and ignored) The person who wrote the blog said that they eventually went to a cdc office somewhere in their area. The nurse/doctor at the cdc took the person seriously and gave a diagnosis of a roundworm infection of some sort. I can seriously feel your heartache about hating everything, people thinking that you are unsocial, and being asked to leave yoga. I am so so sorry that happened to you. I get weird sneers from people and nobody wants to sit by me either. I really understand everything that you are saying and feeling because I've lived it for the past few years...and am still dealing with it. My husband got so mad at me tonight when I expressed my feelings about not wanting to go to his family's house (out of state, we always stay for a minimum of a week to ten days) I hate going, its just awful...I used to start listening to Christmas music in my car in October, now, I start dreading Christmas in September. He's a good guy, but I really wish that I wasn't married. It's bad enough to be so miserable, but I feel like I am making him miserable and ruining his life (which is exactly how his mother makes me feel). That's the worst part of it all and it just makes me want to cry every moment of every day. I look back and I don't know how I have dealt with it all, I think that I just take it literally one day, and one heart wrenching humiliating experience, at a time. I read the Bible and put trust in Jesus, and I can't help but wonder if maybe this is happening for a reason. I wish I lived closer, I'd give you a giant hug!!

TeeGee
December 22, 2015

In reply to by spottyface1

Hi,
I'll look into roundworm infection. Thanks for looking into it fir me.. you really are so kind..I totally understand you not wanting to go away staying at your inlaws. I wouldnt want to go either. People just dont understand the amount of heartache this is. the pain you feel is real and valid. Your mother in law doesnt understand...she probably wont ever get how ypur feel.. I know its so hard. I feel like I'm a prisnor in my house. i really dont go out the door for weeks at a time. if I do go out its mostly to doctors. I never shop at all for clothes. i buy everything online. I get my food delivered from the grocery store by online order & delivery. I wont eat at the dinner table.. I dont want to be that close to anyone having them look directly at my scars & lesions...Its s living hell.. I totally hate life & waking up everyday is nothing but more hell. I wish we lived closer so we could ay least have eachother to hang out with. that would be so great. Your husband im sure cares but just doesnt get the entire issue you deal with.. i guess its hard for orhers to understand. especially men. women care about apperance, we're judged all the time. having this issue takes the person we are away from being ourselves. Everytime i have to go to any family function at family members home. i always stay cleaning up the entire time so i dont have to stay in conversation with anyone up close. its all these measures needed to just get the event over.. I dress in only black, i never stand out. i wont wear any jewlery, i dont want any attention or reason for someone to look at me more than a second. i never have anything to say, in order to never have a conversation with anyone. this is just a terrible life. depressing everyday & all day. i cant wait till night when my family all go to bed so i can sit in peace without feeling so ugly in front of them. its so hard.. i feel so superficial.. Thanks for the Hug & im sending you a Hug back.. Thank you for hearing me. i really feel better getting this off my chest.. i cant explain how much it means to me. I wish i could help you in someway.. Tina

spottyface1
December 24, 2015

In reply to by TeeGee

Hey girl, I'm in such a rotten mood...I'm sorry I haven't gotten back to you. The thought of going to spend Christmas with my husband's relatives makes me want to cry. He has lots of nieces and nephews and you know how kids are...they stare and ask questions like, "what's wrong with your face" I know what I'm dealing with now, but I didn't figure it out soon enough to get it all healed before Christmas. It's so humiliating. I don't necessarily wear black all of the time but I do always always wear a ball cap. It's kind of like when you're a kid and you hide under the covers because you think there is something in the room. Like, if I hide under the covers and I can't see them, then they can't see me...I just put on a ball cap, pull the bill down low, and keep my head down. I only look up when I need to see something. I can only see a few feet in front of me, but it's usually enough to keep me from running into things (usually). I always do the dishes too, so much so that I'm referred to as "the dishwasher". Anything that keeps me from having to interact. My husband is so mad and frustrated with me and I don't blame him. I really don't know if we will stay together. I just want to cry. I'm sorry I didn't get back to you sooner. How are you feeling??

TeeGee
December 24, 2015

In reply to by spottyface1

Hey, Dont apologize.. I totally understand.. this mess we deal with takes the life out of us.. i understand.. it takes control over ever part of daily life. always a huge effort just to get out the door. you not wanting to go to your in laws is totally understandable to me.. i get it.. i know what you mean about kids asking questions..you have to smile & act like it doesn't bother you. when deep down you want to crawl under a rock and hide. My nieces always ask me if my sore face will ever get better... they want to know why i'm always wearing bandaids. your husband just doesnt realize the amount of pain it is for you to deal with his family right now. i'm sure he sees your beauty under the sores.. so he probably doesnt feel its that bog of a deal.. how long have you giys been married & do you have children? Just wondering.. I'm married almost 21 years. We have 2 sons, 22 & 19.. my younger son still in college (Penn State) he's on Penn States ice hockey team.. He's home now for the winter break.. first thing he asked me was "Mom Jeeze, you still have those things on your face" well yeah i do, why else would i wear bandaids. It makes me so upset.. now Christmas is Friday & once again, I look like a freaking monster.. believe me, i'm with you, i dont want to go anywhere. Thank god its cold here, i wear a scarf wrapped around my neck with sun glasses.. like you, i think i'm hiding and nobody can see me since im covering the best i can. thats if or when i do get out yhe door. I think ive bern out the house maybe 6 or 7 times since August. I just stay home, i shower for like 3 to 4 hours, then mess with my face more after my shower trying to find ways to cover lesions.. then im so aggravated i just stay in..If we lived closer we could just hang out...we wouldnt feel uncomfortable around each other. I thank god i have you to talk to.. ive been living in silence for years. its such a relief to talk to someone who understands. so what will you do? will you have to go to your in laws & stay for the holidays?

spottyface1
December 24, 2015

In reply to by TeeGee

Hi Tina,
If you want to send me a quick email at alliwelsh444 (at sign) g mail . com (no spaces) That way I will have your email and I can just reply to you there, I'd be happy to give you my cell too if you want it so that we can talk some time. I know it's Christmas Eve, and Merry Christmas by the way. I know its Christmas Eve and probably not a time when you want to be on the phone talking to a stranger, but if you need support in a moment's notice, you can always send a text (I'd be like your on call support). Then if you ever have free time, and you would like to talk, we can. Maybe for Christmas this year, we both got a new friend.

Healthyagain
March 27, 2016

In reply to by spottyface1

Hi TeeGee and Spottyface1,

I too have some sort of parasitic skin manifestation - though I have accompanying GI issues as well - which lead me to believe this was parasitic fairly early on. I have tried Ivermectin for 3 weeks, and although I seemed much better when on it, my symptoms returned when I stopped taking it. I tried a combination of albendazol, ivermectin, and doxy for a week, but the dye off was so intense that I stopped, i wish i had had the balls to see it through. I went to see a LLMD (lyme literate MD) and though I don't seem to have Lyme disease, I did show high antibodies for anaplasmosis, another tick borne disease, but also transmitted through other parasites. Since it appears to be an active infection they are currently treating me with doxy for the anaplasmosis and then will start a broad spectrum anti parasitic protocol, which switches different anti parasitics every two weeks. The skin around my eyes, and my cheeks are mostly affected at the moment, and I can clearly see white "plugs" or worms embedded in the skin. When I took ivermectin for the first time they seemed "dried up" and were coming out easily without damaging my skin. I started Ivermectin again a few days ago because it seemed to be spreading but the effect is not as strong or sudden this time around unfortunately. Spotty face, are you still on antiparasitics? TeeGee any results for ou

Light at the e…
June 17, 2016

In reply to by pthesmith

You have given me hope. Could you please let me know how things have turned out for you? It's been over 7 years for me that I have had those mites! I feel like it's never going to end. Would love to talk and get more info!

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